| The Registry of Hereditary Auto-inflammatory Disorders Mutations
http://fmf.igh.cnrs.fr/ISSAID/infevers |
| The Diagnostic Score for Periodic Fever - Online diagnostic tool, resources, and flow chart for pediatricians to use.
https://www.printo.it/periodicfever/index.asp |
| Moderated online international patient and medical community, including communities for CAPS, TRAPS, FMF, and Behçets–a NORD and EURORDIS initiative. (The Autoinflammatory Alliance is a moderator for some of these communities.)
https://www.rareconnect.org |
| PRINTO information on pediatric rheumatologic diseases (including many autoinflammatory diseases).
http://www.printo.it/pediatric-rheumatology |
| The American College of Rheumatology site has a search for a rheumatologist feature and helpful disease information.
http://www.rheumatology.org |
| The International Society of Systemic Auto-Inflammatory Diseases
http://fmf.igh.cnrs.fr/ISSAID |
| The EUROFEVER Registry for Autoinflammatory Diseases
http://www.printo.it/eurofever/eurofever_registry.asp |
| La Unidad de Enfermedades Autoinflamatorias (disease information in Spanish): Enfermedades hereditarias
http://www.autoinflamatorias.com/pacientes/?page_id=391 |
| The French Centre de Référence des Maladies Auto-inflammatoires
http://asso.orpha.net/CEREMAI/CEREMAI.html |
| Translational Autoinflammatory Disease Section at NIAMS at the NIH
http://www.niams.nih.gov/Research/Ongoing_Research/Branch_Lab/Pediatric_Translational_Research/tads.asp |
| The HUGO Gene Nomenclature Committee (HGNC)
http://www.genenames.org |
| Club Rheumatismes et Inflammation Image Library and other resources
http://www.cri-net.com/base_image/default.asp |
| Interactive Dermatology Atlas
http://www.dermatlas.net |
| The Childhood Arthritis and Rheumatology Research Alliance (CARRA)
https://www.carragroup.org |
| Sterol & Isoprenoid Research Consortium
http://rarediseasesnetwork.epi.usf.edu/stair |
| American Behçets Disease Association
http://www.behcets.com |
| National Organization for Rare Disorders has a helpful rare disease database
http://rarediseases.org |
| Rare Diseases Europe has a lot of information for patients at:
http://www.eurordis.org |
| Genetics Home Reference–a service of the U.S. National Library of Medicine
http://ghr.nlm.nih.gov |
| Walter Reed National Military Medical Center:Pediatric Rheumatology Division
http://www.wrnmmc.capmed.mil/Health%20Services/Medicine/Pediatrics/Childrens%20Subspecialty/Rheumatology/SitePages/Home.aspx |
| FMF Arthritis Vasculitis and Orphan disease Research in Paediatric Rheumatology (FAVOR)–a not for profit, NGO international research network.
http://www.favor.org.tr/paediatric-rheumatology |
| Single Hub and Access Point for Pediatric Rheumatology in Europe (SHARE Consortium). This link is to an abstract about this initiative. We have linked some of the SHARE articles to the corresponding diseases, and will add them as references as they become available.
http://www.ped-rheum.com/content/11/1/5 |
| SaidSupport.org–The Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID.
http://www.saidsupport.org |
| Our Autoinflammatory Alliance official website. More information, the PDF version of this chart, the CAPS medical guidebook, and other materials are on the site.
http://www.autoinflammatory.org |
| Genetics Testing Registry (GTR) - Search here for any genetic test that can be done at laboratories worldwide.
http://www.ncbi.nlm.nih.gov/gtr/ |
| PubMed: The US National Library of Medicine, National Institutes of Health (NIH)
http://www.ncbi.nlm.nih.gov/pubmed |
| Dermatology Online Image Atlas - DermIS Dermatology Information System
http://www.dermis.net/dermisroot/en/home/index.htm |
| Autoinflammatie.nl–a website created by Dr Anna Simon, MD PhD and Dr Karin Mulders-Manders, MD from the Nijmegen Center for Immunodeficiency and Autoinflammation (NCIA)–Radboud Nijmegen Mniversity Medical Center, Nijmegen, The Netherlands.
http://www.autoinflammatie.nl/ENG/ |
